Spina Bifida Clinic - Tell me something I don't know!

Just got home from clinic and we're resting before the girls and I go onto my pre-op appointments. Clinic was very good...tiring too though. It is a long 5 hours when you are being seen by so many doctors and nurses. Here is who we all see...Urologist, Neurologist, Orthopedic Surgeon, Brace-maker, Physical Therapist, Occupational Therapist, Speech Therapist, Social Worker, Geneticist, then she also has 3 tests and Ultrasounds of her kidneys and bladder. Sigh - long day.

So everything looks good and we should continue as we have been. However, either soon or this spring, Cassie will have to have a surgery on her foot. The doctor said that it isn't due to us not stretching her foot (we have been stretching daily) but it is just because of how severe her club feet are. She will probably have to have several surgeries on her foot throughout her life. I told Cassie during lunch that she will have to have another surgery and her response to it was to look at me and say "They'll put me to sleep for it right?". It doesn't even phase her.

During her Speech Therapy part of clinic, the therapist did a "test" on Cassie. She did very well from what I could tell. And when the therapist told me the "score" I was surprised but then again not shocked. Cassie's age is 5 years 9 months. She tested at an age of 6 years 11 months. Now tell me...are we even the least bit surprised? They just confirmed what we all already know.

She is the only child that I know that is completely fascinated when having xrays and ultrasounds to see her own kidneys/bladder/intestines/shunt. And at 5 knows what all these things are and what they do. I'm a very proud mom...even as she looks at me and tells me and the nurses "I'm so smart!"